Karen B. Herbst is the leading doctor in the United States following lipedema (lipidema, RADs, Heavy Leg Syndrome, Lipoedema...the disorder with many names). She was working out of San Diego California but is now located at the University of Arizona. She has many videos and articles I'm quite interested in. Also known as lipomadoc on the web, here is her self-description from her blog::FAT Disorder Specialist, University of ARIZONA, TUCSON
I am a board certified Endocrinologist by training and have always been interested in fat - why do daughters have fat just where their mothers do, and why do men develop large abdomens and skinny arms and legs as they age. While training at the University of Washington in Seattle, Washington, USA, I was introduced to patients with familial partial lipodystrophy and Madelung's disease (multiple symmetric lipomatosis; MSL)..... Finding out about lipedema was next. Since that time, I have seen many people with Dercum's disease, familial multiple lipomatosis (FML), Madelung's disease and lipedema (and lipolymphedema) from all over the world. While much research remains unpublished, I want to share my understanding of these disorders and provide suggestions for treatment so that you and your healthcare provider can help you live a better life.At the University of Arizona, I will be seeing patients in two locations, the Main campus and the South campus. I will likely see patients with fat disorders on the main campus (University Medical Center).